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A biospy with NO diagnosis????

K

KathyC

Guest
#1
What can I say other than we are a bit confused & definately disappointed in this result!!! Internist's nurse called Fri a.m. to say the report came back "undiagnostic" to which I asked what the he%#% does that mean? She said the report can not say that this mass in the abdomen (approx 2 inches) is or is not cancer. She said our dr was also disturbed by this & called the oncologist. Oncologist said he would sit down with head of radiology with the films & go over them for a more defined answer. We went away for the weekend as we just needed to get away from this for a couple of days & a while ago the nurse called to say the game plan is as follows: WAIT & watch for 2 mo. On Jan 5th they will do a more advanced CT of the ENTIRE chest/abdomen/pelvis to see what things look like. My concern is that 2 of the meds he is on PROMOTE the growth of tumors. Trying to keep positive here, at least the report did NOT come back absolutely cancer. So here is where we stand: a spine so full of lesions that they can't even count them but a negative biopsy from the spine, a negative biopsy of the prostate, multiple nodules on the lower lungs but with no changes they don't want to do a biopsy (fine with us), and now an undiagnosed mass in the upper abdomen. And to top it all off, he suffers from extremely severe Crhon's disease. A WHOLE lot going on here! All drs agree it all looks VERY suspicious but so far NOTHING positive for cancer. So far all blood work holding steady. Folks all I can say is that you're all welcome to wait & watch with us as this saga continues; kind of like a medical soap opera isn't it? To those of you facing much more serious issues than we are at this time, you are in my thoughts & I wish all of you positive outcomes.
 
B

bostongal

Guest
#2
Kathy - I think "wait and watch" is the worst medical experience. Here's hoping that they can get more definitive in the future so that you can atleast know what you are dealing with! My =hug and prayers for you and dh!

Meg
 
M

mrsrocster

Guest
#3
That has GOT to be very aggravating to say the least! Continued prayers and good thoughts abound today and as long as you need them!

Michelle
 
D

debowah

Guest
#4
I can't begin to imagine how exhausting and frustrating this must be for you and your DH. Thanks for keeping us posted and please know that our prayers continue.
 
M

Mgram

Guest
#5
This has to be most frustrating and scary for you both. With all of today's great diagnostice tools, it just doesn't seem possible. Hang in there.........all of us will stand by, wishing we could help.
 
R

reggae

Guest
#6
I hope they can find out something soon.....so that you have a diagnosis you can deal with.

My brother's MIL is going through something similar....test after test and they can't seem to find out the problem. So frustrating...

I'll keep you and your husband in my prayers.
 
J

Jill B

Guest
#8
How frustrating for you both. I hope you get some answers soon. I am keeping you in my thoughts and prayers.

.
 
N

nieciez

Guest
#9
How awful that you didn't get any answers....please know that my thoughts and prayers continue.
 
S

seamom

Guest
#10
That's a difficult time for sure waiting and not getting answers! Hope you are worrying for nothing but it still takes its toll! Best wishes.
 
S

ShipMaven

Guest
#12
I pray that a diagnosis can be found quickly so proper treatment can begin, and I also pray that the dreaded "C" word is NOT in the diagnosis.

Thank you for the update, Kathy. Prayers continue.
 
B

Beryl

Guest
#13
It's hard to watch the soap opera (I hate those shows) but I can not imagine the fear and pain you must be dealing with in having to live it out! =hug=hug=hug and prayers!
 
L

Lisa63

Guest
#15
Sorry to hear this, Kathy. I've been there, and know the frustration you're experiencing. I will continue to pray for good news. And, please take care of yourself in the meantime, as best as you can.
 
B

BostonsJ

Guest
#16
Kathy it is so scary to not know, but in the same token it is also a blessing that he is not presenting with anything. Hang on and I pray that your husband's medical issues can be controlled. Hugs......
 
G

GloBug

Guest
#17
Hurry up and wait... so much easier said than done. Prayers continue that you find out soon what is going on.
 
W

Whimsy

Guest
#18
I hate not having a definate answer. I am not a patient person so I can only imagine what you both are going thru. I hope they find out what is going on very soon.