Finally some answers......

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BostonsJ

Guest
#1
I could not escape from work today I had some major pending meetings that I got thrown into. Work has been wonderful to me and will give me time when Mike comes home, so today although I wanted to talk to his doctors for answers, I just could not. And unfortunately for families this is the time of year when we can't keep up.

I called Mike this morning and was kinda stern with him. I explained that he needed to be more proactive in his medical care and to ask questions, demand answers and to let the doctors know he was to be informed. He said he would. In a way I think he is a little bit afraid to know after the cancer scare and heart attack. But after talking with him, he agreed we need answers.

The cardiologist came in first. Mike asked him what his condition was and why his legs are swollen. Now this is the first time I have heard this.... Mike still has clots lodged in the right side of his heart which are causing him to be in right sided heart failure. I could swear, and it was 3am on Friday morning so I could be wrong, but I thought I was told they had passed and left a valve partially open. Now I am hearing that he has blood clots still in the heart and there is nothing they can do to dissolve those, they need to dissapate on their own. The coumadin and the heparin stop new clots from forming but according to the cardiologist won't dissolve the clots they will eventually absorb back into the system but we hope they are small since these are above the filter or screen whatever they call it. The swelling is an indication the doctor told him of the heart working so hard on the right side. He believes the kidney and liver values are being thrown by the heart failure. So,,,, the doc said when his swelling goes down in your legs, it will be a good indicator that the heart has pushed those clots out effectively.****** And hopefully safely. And you are not going anywhere until that happens, (in case they go to the lungs or worse)......, he is in need of constant monitoring. There is only one clot buster drug and Mike can not take it because of his heart procedure. It could kill him it is called TPA. His potassium and several other factors are off so now he has another IV to keep those values up. Pills were not working. His blood is drawn 4 times a day and adjustments are being made to his meds according to those values. Lasix is being administered but it cannot be administered in greater doses than what he is getting because it is too risky.

The pulmonologist came in and said that they had sent Mike's blood to 3 labs to have some test to determine if he by family history is predisposed to clotting problems. Two laboratories came back and conclusively ruled no. So now they are still scratching their heads about why he is clotting so much.........they don't know. His heparin and his coumadin are now being increased. At this point the doctor knows he needs more, they don't know why, but they also want him to be in the hospital for the every 6 hour blood testing to ensure nothing goes goofy with it again. ,,,,,,, they are watching this closely to figure out what his dose needs to be.....so that doctor said I hope you are comfortable, you are with us for a while. He told Mike anyone else would have been sent home yesterday but not you. The doctor said do you realize how many people you scared when you arrived at this hospital? Mike said well I know I was pretty scared I thought I was going to die. The doctor said well we did also, you were in complete shut down, you are lucky to be alive and now........until we figure this out, it is baby steps..... and you will not be released until we are sure you won't do this again! So while Mike didn't want the laptop before, now he needs something to do and I will stop at home instead of going straight there, and bring it to him tonight. I had hopes for this weekend but I am also relieved that they are not shoving him out the door until he is totally stable. Oh yeah the potassium levels were way too low so they now have it IV line of their own. Good grief this is a constant tweaking which is why he has to be in the hospital until he is leveled out.

This all that is known and I'm sure we will not know more until maybe tomorrow, so I thought I'd take a minute to check in early with a report.

Thanks to all of you for your support and kindness.
 
S

ShipMaven

Guest
#2
Thank you for the update, Judy. It's really a roller-coaster ride, isn't it?:( One of the reasons - if not THE reason - his potassium levels are down is because of the high doses of lasix he's receiving. It's a very powerful diuretic, but not of the potassium-sparing family.

Prayers continue for Mike and you.
 
D

debowah

Guest
#3
Well that is quite a report. Maybe the doctors have given Mike the talking to he was going to get from CruieCutie, although I am certain that she still has a few choice tidbits to share with him. Hopefully his numbers will get back in line, the clot will dissolve without incident and life will get back to normal for you. Prayers continue......
 
K

korinalacount

Guest
#4
Hang in there Mike,sitting here with no legs and it could be months before I do I am told,and no butt I feel for ya,I hope no surgery for me,I am waiting on pt 2-3 weeks from now and am on a very dangerous drug which is supposed to help the inflammation,took 6 last night,right leg feels worse,more pins and needles but John and my mom say that might be my leg trying to come back,left leg can put weight on but still pretty numb,but can get to bathroom now on my own so John was able to go back to work,sure hope our insurance is good. Judy if you give me Mikes number I would be happy to call him,we could talk while we both lay there,and maybe cheer each other up. Many prayers Judy cant sit anymore,pm or post me with his number if you like,and Mike never give up,love,hope and faith are on your side.
 
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mrsrocster

Guest
#5
Oh wow Judy! First, get Mike some bananas......can he have those to help boost the potassium? Second, give him hugs and well wishes from all of us. Third, take a breath for yourself and make sure you don't get sick! Whew, I can't imagine the running around and worrying you are doing!

Thanks for keeping us posted, we are worried! Whats the latest on your dad?

Michelle
 
P

popcorn

Guest
#6
Thanks for posting. And good for Mike to be able to remember all that and give you a good report. And hopefully all that information will keep him on the straight and narrow and that he gets better soon. And if he is in there long enough, perhaps they will be able to find a bed that is long enough for him!

Take care of you now.

Liz
 
P

popcorn

Guest
#7
Alf would gladly give him some potassium. He is at the danger level with too much potassium and is not allowed to eat bananas. Plus a lot of other foods.

Liz
 
J

Judi

Guest
#8
Judy, thanks for the report.

A suggestion for you....if you still have questions about Mike's condition and want other answers from the Doctors, write them down. That way Mike won't forget to ask.

Prayers continue for both of you from here.
 
A

audrey

Guest
#9
Judy I am sure if Mike want to post on cruise addicts we will keep him busy. I will continue to prey that he will come home soon.
 
K

KathyC

Guest
#10
Sounds like Mike may be there for a while but it is the best place for him. Now you must learn to balance your time at work & visiting with him so that you get enough rest as you don't want to be run down & sick when he does come home. Hoping that he continues to make steady progress.
 
C

conniecat

Guest
#11
All the training, medical knowledge and breakthroughs, and it comes down to the heart has to heal itself. Give him a hug for me! Do the folks at Nelson know about Mike?? I could post if he wants me to. cc
 
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BostonsJ

Guest
#12
Connie I don't know if he wants it posted there. He has a couple of close friends there and he doesn't want them to worry. I'm trying to get the laptop wireless card fixed up so he can have the computer. I'm taking it in to a guy at work tomorrow. I almost posted there myself and decided not to. :)
 
B

BostonsJ

Guest
#13
PS Mike looked good tonight, scared but good. He is thankful that they are not kicking him out too soon this time, and relieved that they are staying on top of his issues. He is being a good patient. We will have more lab reports tomorrow .....

I owe PM's to many people. I promise I'll answer soon. I got home late tonight and my eyes are closing// Thanks and hugs to all. Good night.
 
N

nieciez

Guest
#14
Big huggs to you Judy...and lots of prayers for Mike. Thanks for the update and please take care of yourself too....I know this much be so hard on you, I can't even begin to imagine the stress!
 
J

JANPEP

Guest
#17
Thanks for the updates Judy. I'am glad you got some answers todat & that they are keeping Mike until they get it right.
Prayers & good thoughts continue.
 
H

Hooked

Guest
#18
Judy I can't say anmore than everyone else has already said. How 'bout another hugggggg... (((((((((((((((((((((((Judy))))))))))))))))))))))))
 
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maw

Guest
#19
At least you have some answers --Paw won't ask qestions much either. Sending good wishes from Mo. again. Hugs.
 
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bostongal

Guest
#20
Judy - =hug All my best to you and Mike. I know the low potassium drill very well and hope that his starts to improve soon. There are only so many blood draws before you run low on veins. :D Seriously though I hope every day brings continued improvement.

Meg