Went to Iowa City today; it was a long day to say the least but I think we may actually get some answers this time. Saw a lymphoma specialist today, a female dr who spent approx 2 hrs with us. She of course did not have time to go thru the vast amount of medical records we took with us but she had looked at the inital report sent ahead of our appoint from our local oncologist. After listening to our situation she did a quick neurological exam & I could tell she was extremely concerned with the weakness in Mike's lower extremities. She said that in her opinion, his spine should have been looked into in much greater depth a long time ago. She said when you get a "non-diagnosis" from a tiny biopsy & you can see that things don't look good that sometimes you have to go in & really take a look which means possible surgery on the spine to really get in & get a very large sample. She left to look at the MRI of the spine from Nov 3rd & came back & said she is not an expert on MRIs but something is going on here. She got us an appoint this coming Tues morning (she tried to get us in this afternoon but couldn't) with an orthopedic surgeon who specializes in cancer of the spine. If he agrees with her, it looks like we will probably have a surgical biopsy of the spine after the holidays. She says it has to be determined NOW if this is cancer & if not cancer, we have to determine what disease is in the spine. We see her again on New Yr's Eve! The spot that they told us was not going to ever go away but then they told us in Sept was gone is NOT gone; it is very small but it is not gone. She wants another PET SCAN done within the next month but said the spine has precedent over everything else for the time being. When we do get the PET done if there is absolutely NO uptake of sugar to the node then she says we will not worry about it (the Sept PET did show a very tiny node with a very small uptake of sugar) but if the PET shows even a tiny uptake of sugar then the spot will need to be watched closely. I finally feel like we might actually get to the bottom of this after all of this time & she made it very clear that no matter what other problems come up, she is going to keep her eye on the lymphoma & again said she does not believe in accepting "non-diagnostic" biopsies so I don't think we are going to be sent home to wait anymore for months to pass & then repeating the same kind of biopsy. Before the visit today I was feeling negative about this trip--just another dr & wait & see what develops attitude but not this time. I hope the dr we see Tues will be as aggressive at getting to the bottom of this spinal problem as this dr appears to be. Thanks for your support. More updates will follow.